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to my immense displeasure, i've noticed that i'm lactating a little bit. it's a very small amount, and doesn't leak -- i need to squeeze and poke around a bit to see fluid, and then it's only a few drops.

it's not really impacting my life, besides the fact that it's kind of gross, but obviously people who aren't pregnant shouldn't be lactating. i'm definitely not pregnant (not sexually active), and i'm not on any birth control that would be messing with my hormones. so, i guess i should make an appointment with my GP and get my prolactin levels tested.

i'm confused, though. i've been on my current dose (0.75 mg) for well over a year without any trouble. why would i be getting this side effect now, randomly? did it just take that long for the prolactin to build up? plus, isn't this kind of a low dose for this to happen?

ugh, i really don't want to change/lose my risperidone. it's really done me a world of good in staying clear-headed.

will this go away if i wait it out, or will it get worse? am i doomed to lose the risp? ugh! if anyone else has experienced lactating (on risp or whatever else), what did you do and how long did it take to clear up?

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I lactated on risperidone. I don't remember my dose though as it was 9 years ago but I think it was higher than 0.75 mg. My pdoc at the time wasn't concerned about the lactation but then it started messing with my periods - started skipping periods. That's when pdoc took me off of it. She never asked me to have my prolactin checked though.

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I didn’t lactate, but after one month, I had to buy a larger bra. I know that sounds like fun to some people, but believe me when I tell you it sucked. I didn’t have the stomach to mess around with my nipples. I just got off that med as fast as I could.

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@Gearhead that is TERRIFYING to me! i'm a little worried about that happening. i don't like my breasts even at the small size they are now. i prefer myself with a flat profile. did you bounce back after getting off risperidone, or was it permanent?

@kittyloaf i kind of want to stick out the lactation to see if it gets better or worse, but i'm thinking this isn't really a side effect that goes away... i'm just so reluctant to let it go because it's been such a good med for me. i don't like that it could start messing with my periods, though.

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They did go back to normal, more or less. At any rate I was able to get back in to my regular bra size. 

The porn star tits were insult on top of injury, because risperdal also didn’t stop my manic episode. YMMV. If it’s working for you in other regards, I hope you and your pdoc can figure something out.

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I must be unusual.......I've been on Risperdal for 2 years now, and it has not caused any lactation, or breast enlargement......I'm currently on 3mg.

Maybe, might have something to do with the fact that I've already been through menopause 4 years ago, but I'm really not sure.

Haven't gained any weight either......I have yearly physical and bloodwork, and doc says everything is fine.....Also have a mammogram every year, and everything good on that, too, so far.

Maybe YMMV.....I'm not sure what percentage of people on Risperdal get the lactation and breast enlargement...

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@CrazyRedhead my pdoc always told me that a fairly small number of people who take a med get the side effects that they warn about, but just anecdotally, it almost seems more like you're lucky not to get them. i'm glad you're not seeing any of these effects, though! i do wonder about how menopause affects hormonal side effects like this. that would be an interesting study.

good news, everybody! my referral to a pdoc went through. i see her on july 22, so thankfully i don't have to bring this issue to my clueless gdoc unless things get markedly worse. it's still just pinprick tiny drops, and only if i mess around with my nips. i'm over being totally freaked out by it, so i think i should be fine until i see the new pdoc. of course, will update if it takes a turn for the worse.

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I lactated on both risperdal and invega. It wouldn't have been that huge of a problem, except that my breasts and nipples were also extremely painful. I had to discontinue.

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@aura yknow, i've noticed some increased tenderness, though not to the severity that you encountered. i was wondering if it was associated or part of the usual tenderness i get around my period. thanks for sharing your experience, it's good to know. i think i've thought more about my tits in the last week than i have in like, my entire life.

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I was on 2-3mg for several years. I was fine for that long, no lactation; I have a big chest to begin with (I hate it) and I didn’t notice a difference in size. Apparently it does or can take time to build up a prolactin level, mine finally reached a point where pdoc said no more. It’s a shame, it was a great med otherwise. 

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@Rabbit37 interesting, i guess mine has been slowly building up over the past couple years. it is a shame, it's been great for me too.

i think one of the biggest lies society tells girls is that having a big chest is always Fun and Hot and Sexy. i've known plenty of folks who wished they hadn't been "blessed" with it. 

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20 hours ago, echolocation said:

 

i think one of the biggest lies society tells girls is that having a big chest is always Fun and Hot and Sexy. i've known plenty of folks who wished they hadn't been "blessed" with it. 

Totally agree.....I don't have a huge chest. but I've always wished for a smaller one.....I remember one of my friends who never had to wear a bra--I was sort of jealous about that.....LOL

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3 hours ago, CrazyRedhead said:

Totally agree.....I don't have a huge chest. but I've always wished for a smaller one.....I remember one of my friends who never had to wear a bra--I was sort of jealous about that.....LOL

right? i had a roommate who always ran around without a bra (or she'd wear the flimsiest bralettes) and she looked great. i always thought she was really lucky.

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On 6/19/2019 at 1:17 AM, echolocation said:

to my immense displeasure, i've noticed that i'm lactating a little bit. it's a very small amount, and doesn't leak -- i need to squeeze and poke around a bit to see fluid, and then it's only a few drops.

 

Aaargh, this happened to me too! Yesterday morning I was kind of curious, so I squeezed a little and I only saw a little bit of clear fluid. In the evening I pinched the right one and there it was! It was just one drop, but it was disconcerting. I'm on 1 mg of risperidone  before bed but occasionally I take 1.5 mg of 2 mg (before bed and in the morning). 

Not sure what to do though. At first I thought risperidone was helping me but lately I'm losing more hair, my libido is almost non existent and it's making me sleepy during car rides (of course that is when I'm the passenger). I'm still having way too much intrusive thoughts ( 'white bear problems') and I'm not liking the lactating thing.....

What did you do? Did you continue with 0.75 mg?
 

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@Catwoman i don't see my new pdoc until the 22nd, so for now i'm just still taking it as usual. still lactating, though it hasn't gotten worse, thank goodness. i'm not sure what to do. unless my pdoc advises otherwise when i see her, i think i'd like to titrate down/off. from what i'm gathering here, prolactin-related side effects don't seem to get better -- worse over time, if anything. i'm interested to see if my ruminations come back when i reduce the dose. mentally, i'm far better than i was when i went on risp a couple years ago, and i'm wondering how much of it is meds and how much of it is me.

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Posted (edited)

I'm seeing my pdoc this afternoon. No idea what she will advise. Maybe she can tell me about other health risks of high prolactin (although I suppose my levels aren't that high).  My period should be starting right about today and I see no sigh of that either. Maybe that means risperidone is messing around with my hormones ....

I still lactate a little bit; I have to squeeze to get one of two drops, so it's not leaking. I don't like the sensitivity and my husbands says my breasts look fuller. It's not a big problem, but I don't think risperidone is helping me with my intrusive thought either, so I see no point in staying on it.

 

Edited by Catwoman

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@Catwoman in your case, i would definitely go off of it. you shouldn't have to put up with those side effects if you're not getting much benefit in return. please update if you can after pdoc, i'm interested in hearing what the next step is going to be for you.

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1 hour ago, echolocation said:

@Catwoman in your case, i would definitely go off of it. you shouldn't have to put up with those side effects if you're not getting much benefit in return. please update if you can after pdoc, i'm interested in hearing what the next step is going to be for you.

My pdoc didn't really had any useful advice for me. She could understand that I felt uncomfortable and said it was no problem to go off. She was a little surprised about this side effect because I was only taking 1 mg (and 1,5 mg or 2x 1 mg PRN). I was already taking 0.50 for a few days so I will contine with 0.50 mg for a week and then stop. I might try another AAP, probably low dose aripiprazole.

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Lactation has been listed as a possible side effect of the meds I've been on. They don't say whether that's gender specific so I remember wondering whether I would start lactating, which would be awesome because I'm always running out of milk. Alas my nipples remained dry.

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4 minutes ago, Fluent In Silence said:

Lactation has been listed as a possible side effect of the meds I've been on. They don't say whether that's gender specific so I remember wondering whether I would start lactating, which would be awesome because I'm always running out of milk. Alas my nipples remained dry.

Your nipples could actually explode with delight if that happens. Its all coming full circle

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