My pdoc recently swapped out my pimozide (Orap) for fluphenazine (Proloxin) for my Tourette's syndrome.
While I was on pimozide, I gained 10.3 lb over the course of three weeks. I stopped taking it because it wasn't working, and because I read some pretty scary things about it.
When I stopped taking it, I lost 5.3 lb in a matter of a few days...
When I started fluphenazine just 6 days ago, I have now already gained 16.2 lb, and my appetite is ravenous (way more than it was when I was on pimozide).
Has anyone experienced this on fluphenazine? My pdoc said it wasn't supposed to do this, that is was supposed to be almost just like haloperidol (Haldol).
I'm starting to think I should just deal with my Tourette's on my own... I was having enough weight problems with the aripiprazole (Abilify) alone...
Just an update based on my posts earlier during this year. I ultimately wound up remaining on the oral antipsychotic (Latuda 20mg) which I started taking after completing my 2nd probation term in this decade in January 2018 stemming from a January 2015 motor vehicle offense which ultimately slammed me with a 3rd degree felony (after already acquiring a misdemeanor for resisting arrest on foot in June 2012) related to having schizoaffective disorder and experiencing manic episodes and hallucinations. I was previously diagnosed with Bipolar 1 With Psychotic Features after the 1st incident I was involved in back in June 2012.
My main issue the entire time I was serving both probation terms was that I was always court ordered by a judge to continue taking the antipsychotics by injection and to continue my psychological treatment. My primary concerns with the antipsychotic medication was always having intolerable akathisia (inability to sit still), tremendous amounts of weight gain (My height is 5'8 with a small to medium frame and my weight maxed out in January 2018 at almost 310lb after being around 155lb until after June 2012, severe gynecomastia (recently won Risperdal / Invega class-action lawsuit), anxiety, depression, and disorganized speech (currently seeing a speech pathologist to suppress language disorder).
Following the completion of my 2nd probation term, I was initially placed on Latuda 40mg taken with food at night and then tested out Fanapt 6mg. I was still experiencing most of the side-effects and was still outright desperate to eliminate all of the symptoms I just mentioned. By the beginning of March 2018, I did ultimately try consulting with my psychiatrist about switching to a mood-stabilizer as monotherapy acting in place of an antipsychotic and accepted the risk that if I actually suffer from schizoaffective disorder and it wasn't Bipolar 1 With Psychotic Features that I would probably relapse and hallucinate again and I was even in agreement to keep a bottle of antipsychotics as a PRN and to just eat them like crazy if anything happened.
I discussed everything with him (I never considered him to be a control freak) and he said that he would eventually be willing to try my suggestion but asked me if I had any other idea in mind that involved remaining on an antipsychotic for slightly longer. I suggested to him that I'd be willing to try taking the Latuda at 20mg instead of 40mg before switching to a completely different class of drugs.
In retrospect, I'm not even completely certain if any of the oral antipsychotics including the higher dosage of Latuda or Fanapt were even that badly tolerated.. Now, I'm not condemning an entire class of drugs because I now support some of the low-dose oral antipsychotics for myself but I ultimately think that my former overall disgust and intolerance for the antipsychotics was because I was only ever taking them when I was either locked up in county jail and the overall quality of the drugs was really bad and primarily because the only time I was ever actually taking them was when I was taking court-ordered injections. That basically explains why my experience with the mental health system always sucked up to that point.
I'm not trying to speak to highly of myself here but my psychiatrist has always said that he considers me to be one of his higher functioning patients, therefore the reason why he thinks I was always so vocal about all the underlying side effects from the injections and was more sensitive to them than the majority of his patients, even at 260, 280 or 310 pounds, my weight was never really a factor for me in terms of reacting to the meds with less sensitivity.
It simply didn't matter what injection he would put me on. I was on so many of them including Invega, Aristada, and Invega and they always caused more damage than they did anything positive for me. I always felt like the compromises I had to make to not hallucinate and remain out of legal trouble were simply too much to take. The slow-release form of the injections was always too intense for me but I was honestly being completely forthright when I admitted that I didn't want another episode involving the boys in blue to occur ever again.
At the time of my last post, my dosage was already reduced to 20mg and I was still complaining on a regular basis about everything I was still feeling but it wasn't until the end of March when the restless / walking on hot sand feeling finally began to subside. My overall appetite decreased enough to where I lost over 50 pounds by the beginning of the summer (since then the weight loss has stopped at around 260lb unfortunately but I have remained generally stable in terms of my weight). I won a class-action lawsuit against Risperdal / Invega in February and my weight became low enough where my plastic surgeon agreed to perform male-breast reduction surgery on me after denying me previously because I became so overweight / obese after I was released from county jail and the results were very successful without needing revision surgery thus far.
My speech disorder did improve a little but unfortunately wasn't completely going away by the end of the summer. I still felt like I had something like aphasia where I couldn't think of common words or name common objects and the words wouldn't return to my mind until 10 or 20 minutes after the conversation took place. The speech pathologist I eventually saw for this referred me to the audiology department at my local hospital for Central Auditory Processing Testing and it was revealed that I do in fact have a language decoding disorder (my intuition was right all along) which is certainly aggravated by having schizoaffective disorder and maybe even still by the medication.
I only become somewhat anxiety-ridden and become depressed right after I take the medication with some food, therefore I normally take it right before I go to sleep. By the time I wake up, I am no longer experiencing the anxiety and paranoia but I never become psychotic.
Still, the most important thing is that I'm no longer experiencing any of that indescribable akathisia and thank god the weight gain reversed before I hit 350 and I no longer have to walk around with female-like breasts anymore.
This is easily the most balanced I've felt since I developed the mental illness in the beginning of this decade. I'm not a morbidly obese zombie with female-like breasts pacing all day and night with akathisia but I'm also not hallucinating and running away from the local police department during a welfare check or speeding from the state troopers on major highways either. The delusions are still there at certain times except mild enough where I just laugh them off most of the time and don't believe the majority my own deception.
I can't remember a time when food wasn't THE main focus in my life. Even when I'm so full and can't eat another bite...my thoughts wander to what else I'll eat later. Diets, eating plans, Weight Watchers Summer Camps, gastric bypass, journaling what I eat and/or exercising will START to give results the first few weeks and then my body just basically says "F you" and shuts down. No more weight loss. If I can't get the gratification of weekly seeing measurable change in my efforts...I'm right back to food.
Overeating has ruined my life. Whoever I COULD have been when I started out a sweet little girl was squandered when I somehow started using food to placate myself VERY YOUNG. Then it became a horrible guilty, shameful and "what's wrong with me" set of glasses I looked at life through. I was constantly pushed by my mom to stop eating, go on a diet and exercise. She tried EVERYTHING until well into my adult life. She too had weight/eating issues and knew what life would be like for me. She tried to help the only way she knew how but it set up a terrible vicious cycle of sneaking food to make myself feel better and loved and treated special...that's what food feels like to me. When I look at my family dynamics I can see all the ways life in general contributed to this addiction. But breaking out of it has been a constant struggle. Now for the last 2-3 years I've literally given up. I'm 58 now and it feels like, short of a miracle, I'll die fat. My hips, spine and knees are in terrible shape (of course they are).
Being fat set up a way of thinking and acting in all relationships with people that I also am exhausted with. I honestly with all my heart and fiber of my being think and feel that pleasing someone else will keep them in my life and they'll pay what little attention to me they are willing to give me. Not all people have been horrible, I've had some great friends over my life...but of course, THEY HAD LIVES and I was never the center of anyone else's life. I would have done anything through my mid forties to make someone else the center of my life in hopes of finally finding someone who wanted to team up and walk through life together. Now? I'm too old. I'm too set in my ways. It's just not as important. I'm past the age of finding someone to "be a couple" with...no I'll never define who I am that way. I'm too old for kids and of course at this point I should've had grandchildren. There will be no one to take care of me as I get older. I literally hope God takes me out while I can still walk and am living on my own. I never want to be institutionalized in an assisted living/nursing home type of situation.
Thanks for reading this.
I am being targeted and bullied by my neighbors where I live. I currently live in an independent living home. I am the youngest one here (67 years old). Other neighbors who live in my building admitted that I have been singled out and targeted by the bullies that live here. It seems that no matter where I live, I get singled out and bullied. Must be something I am doing.
In my new independent living home, there are groups of women that stick together and have scheming get-togethers. I was invited to one and never went back. Unfortunately before I discovered one such neighbor was a party to all this, I had confided in her. She roped me in very easily. I am alone and isolated and there is no support in my life. So, I am easy target. I also am a nice person who does not have the ability to actively hurt someone.
I try to get away from these groups (I call them the axis of evils), I put their calls on block so they can no longer text me, I unfriended them on Facebook (I no longer go there anymore). If they don't talk to me once a week, they will send out an alert to go and find me or they will call the cops and to do a welfare check on me. They bang on my door at all hours and yell my name thru the door to get me to come to the door, then they bust in almost knocking me over and sit down for a "chat". While they are chatting they start taking pictures of my cat and my apartment. I should have asked why they were taking pictures inside my apartment, but I dissociated and could not defend myself. I no longer allow them in my home. I won't talk to them over the phone nor text them, nor return their phone calls. The next time they call in a welfare check on me, I will cite them for harassment with the police when they show up. This group of women have admitted to me they are mean and will take action against others who live here if they don't like them, which I have witnessed. So, for now, I walk on egg-shells around them.
I stay away from everyone now, keep my blinds closed and don't answer the phone unless I know who it is calling me. My psych doc upped my maintenance medication and added new medication. He's been calling me frequently to see how I am. I do live with sui*ide ideation, so he's worried about me. Unfortunately I am living in Section 8 Housing, so moving is very difficult to do. So, just trying to keep myself safe from the "Axis of Evil".
Needed to vent to get it out there what I am living with. Thank you for reading.