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More a situation.

I got my TSH done about a month ago and it was 8.9ish.  way high.  My pdoc  when reviewing the results two weeks ago changed my dose from 100mcg to 125mcg. 

Before I did anything at the new dose, however, my TSH came back at 2.4.  (it's a long and unnecessary story about why there was another lab test).

I have an email to my endocrinologist who's going to be taking over thyroid care.  My instinct, and what I asked her, is to keep it at the 100mcg now that we know that it's back within the normal range.

Does that make sense?  Also, is there any world in which two drastically different results would make sense?  Same time of day, fasting, no meds, etc.

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3 minutes ago, dancesintherain said:

More a situation.

I got my TSH done about a month ago and it was 8.9ish.  way high.  My pdoc  when reviewing the results two weeks ago changed my dose from 100mcg to 125mcg. 

Before I did anything at the new dose, however, my TSH came back at 2.4.  (it's a long and unnecessary story about why there was another lab test).

I have an email to my endocrinologist who's going to be taking over thyroid care.  My instinct, and what I asked her, is to keep it at the 100mcg now that we know that it's back within the normal range.

Does that make sense?  Also, is there any world in which two drastically different results would make sense?  Same time of day, fasting, no meds, etc.

From what I understand, TSH is an upstream request by the pituitary for more thyroid to be emitted and there can be problems with the TSH process itself, in correct response to thyroid hormone levels.  Sometimes the T3 and T4 levels are checked to make sure the TSH varies accurately along with them.  There is also a thyroid problem called Hashimoto's that causes periodic inflammation and can make your thyroid go out of whack.  I think they usually check for that with TPO levels.  

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47 minutes ago, dancesintherain said:

More a situation.

I got my TSH done about a month ago and it was 8.9ish.  way high.  My pdoc  when reviewing the results two weeks ago changed my dose from 100mcg to 125mcg. 

Before I did anything at the new dose, however, my TSH came back at 2.4.  (it's a long and unnecessary story about why there was another lab test).

I have an email to my endocrinologist who's going to be taking over thyroid care.  My instinct, and what I asked her, is to keep it at the 100mcg now that we know that it's back within the normal range.

Does that make sense?  Also, is there any world in which two drastically different results would make sense?  Same time of day, fasting, no meds, etc.

I had mine bounce around too occasionally, no idea why. Eventually evened out. I would guess that the endocrinologist will was to keep a close eye on it to see if the number settles somewhere 

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thank you both.  I'm suspicious for hashimoto's, but not a definite.   my thyroid antibodies (?) are high enough to suggest it but not high enough to be clear.

I'll see what the endo does with it.  I think I'm staying at 100mcg for now.

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I have hashimoto’s but I don’t really know all that much about it unfortunately. My levels have bounced like that once. They evened out though eventually. I hope your new endocrinologist is good! Mine is so good! I just asked him about how to take levothyroxine properly in detail! I’ll have to keep you posted! I was taking it wrong too!

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good to hear from you.  My endo is actually not  new to me--just new to treating my thyroids.  She's also my gyno...she's a gynecologist/reproductive endocriologist, which made me realize I could ask her to  handle the thyroid piece.

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So I realized I didn't update.

I heard back from my endo and she wanted to raise the dose to 112.  She said that the 8.8something that had us going toward 125mcg was probably equipment failure or something random.  But the fact that I'm still having symptoms (namely, that I'm freezing all the time) means that we don't necessarily want to stay put at 100mcg.  She said that most people feel best with a level between 1 and 2, so although I'm normal, it's not necessarily optimal. 

We will see how it goes.  I'm also going to let her know my misunderstanding for taking it (that I thought you could take it with other meds) and that that might impact things.

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Posted (edited)
1 hour ago, dancesintherain said:

So I realized I didn't update.

I heard back from my endo and she wanted to raise the dose to 112.  She said that the 8.8something that had us going toward 125mcg was probably equipment failure or something random.  But the fact that I'm still having symptoms (namely, that I'm freezing all the time) means that we don't necessarily want to stay put at 100mcg.  She said that most people feel best with a level between 1 and 2, so although I'm normal, it's not necessarily optimal. 

We will see how it goes.  I'm also going to let her know my misunderstanding for taking it (that I thought you could take it with other meds) and that that might impact things.

Good to hear your update!

I didn’t know that being frozen all the time means you are symptomatic of having hypothyroidism? Am I understanding you correctly? I wonder if my thyroid levels are off. This winter has been so weird. I usually run hot. Always have. And I usually wear 3/4 sleeve shirts all winter. But not this winter. 5 ish months ago or so I for the life of me cannot get warm. I wear layers and thermal tops and leggings under thick sweaters and clothing to stay semi warm. Otherwise I shake from being so cold. 

Edited by Wonderful.Cheese

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thanks Cheese!

Yes--being cold all the time is a symptom of hypothroidism.  It can also just be that you are cold all the time.  But it at least merits checking out, particularly if you are not normally cold. 

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On 3/7/2020 at 4:04 PM, dancesintherain said:

thanks Cheese!

Yes--being cold all the time is a symptom of hypothroidism.  It can also just be that you are cold all the time.  But it at least merits checking out, particularly if you are not normally cold. 

Thanks for the info dances! I am due for labs in September. I think. I thought it was earlier. I’ll have to double check. Anyway, thank you again!

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You’re welcome cheese! Maybe worth an earlier check if you’re having possible symptoms.

she said to go ahead and bump to 112 even though I hadn’t been taking it properly but to watch for signs of hyperthyroidism in case it’s too much once I take it correctly.

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